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Descriptive Study of Hemophilia Person's Life and Care in Aldiwanyah Province/Iraq
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| Author:
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ABDULAZIZ WANNAS ABD, SUZAN SABBAR, MUTLAG
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| Abstract:
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Both hemophilia A & B are recessive, X- linked disease due to gene mutation, charge of clotting factor proteins needed for clot formation after bleeding episode. The study was aimed to evaluate the life quality and major problems of hemophilia patients. Analytic information from all (82) person with hemophilia A and 13 person of hemophilia B; all patients were male. We found that on demand treatment is carry high risk of recurrent bleeding episode if compared with prophylactic treatment specific challenges to maintain prophylactic treatment in regular way in spite of effort to convince hemophilia patients that prophylactic therapy prevent long term complications, hemophilia patients refuse regular regimen believing that continuous therapy lead to early onset complications. Target joint involvement in our study mainly occur in large joint like knee joint 59.09%,ankle joint(15.45%) and lesser joint involve was the shoulder joint(1.81%);also we found 4 patients of all 95 infected by hepatitis C and only one patient with human immunodeficiency virus ((HIV). The present study on people with hemophilia A with developed inhibitors (a small group) ;( 1) patient with mild inhibitors, 3 moderate inhibitors and 2 sever and only one patient with moderate inhibitors in hemophilia B. To improve the life quality, with recombinant factor VIII and factor IX as prophylaxis can prevent damage to the joint and reduce the rate of bleeding in the joint in hemophilia .intensive hemophilia care may be introduced the accomplishment of all hemophilia centers requirement like medications experts staff, physiotherapy, psychological support and family counseling.
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| Keyword:
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hemophilia a, hemophilia B, life quality.
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| EOI:
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-
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| DOI:
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https://doi.org/10.31838/ijpr/2021.13.01.297
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| Download:
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